Aria was born on Saturday 3rd June, 2006.
Two weeks later she was diagnosed with a very rare condition of the bowel known as total intestinal aganglionosis or total Hirschsprung's disease. There is no cure and it means she would never be able to digest food. There is also a problem with Aria's kidneys. Her condition is because of a genetic flaw in her DNA which has also caused her kidneys to be unusually small. This causes abnormal kidney function as her small kidneys are struggling to keep up with her growth.
Aria's only hope of long term survival and a chance to eat rests in bowel and kidney transplant. For more information on Aria and her condition see www.aria.org.nz.
Safe T Sleep is donating money to the MacDonald family and thought it would be wonderful to try and raise some more awareness and funds for the transplant cost being they are set to leave for America very soon.
Aria’s only hope of long term survival and a chance to eat rests in bowel and kidney transplant. This operation is not done in NZ or Australia but the best place is America with the cost of $1-$2 million US dollars. It is still a risky operation but the odds of survival are getting better as advances in medical knowledge continue.
Her family and friends are busy fundraising for the operation (there is hope the government might pay for this) and the cost of living in America with no income for 2-3 years. Please consider some of the many ways in which you can help out or support Aria and her family. The family is hoping to leave in ’09 for America. Aria is a bright smiley little girl who handles the trials in her life amazingly well. Her life is a precious gift from God who is taking the MacDonald family on a journey according to His great purposes.
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